IPPOSI

IPPOSI, the Irish Platform for Patients’ Organisations, Science & Industry, is a Company Limited by Guarantee and a charity based in Dublin. It describes itself as "a patient-led organisation that works with patients, government, industry, science and academia to put patients at the heart of health policy and innovation."^[1]

Laura Brady is the Chief Executive. It is particularly focussed on issues associated with the use of patients' data.^[2] It runs a Patient Education Programme concentrating on clinical trials Health Technology Assessment, health information, connected health and rare diseases ^[3] and on how drug treatments are financed.^[4] It works with the European Patients' Academy on Therapeutic Innovation (EUPATI) and Dublin City University's Centre for eIntegrated Care.^[5][6]

It runs conferences and seminars on a variety of topics including data protection.^[7]

It is associated with the European Platform for Patients’ Organisations, Science & Industry, based in Brussels which was established in 1994 as part of the initiative to promote patients' rights.^[8]