Sickle Cell Disease Association of America

The Sickle Cell Disease Association of America, Inc. (SCDAA) is a nonprofit organization with the sole purpose of supporting research, education and funding of individuals, families those who are impacted by sickle cell disease.

Sickle Cell Disease Association of America, Inc.

Formation	1971 (1971)
Type	Nonprofit organization
Purpose	Sickle-cell disease Research, public policy, education and community service.[1]
Headquarters	Baltimore, Maryland, U.S.
Region served	United States
President	Regina Hartfield
Website	www.sicklecelldisease.org

Mission statement

"To advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease."^[1]

History

The Sickle Cell Disease Association of America, Inc. originated in Racine, Wisconsin. Representatives from 15 different community-based sickle cell organizations came together at Wingspread, a community center, as guest of the Johnson Foundation. There was a common belief that there was a need for national attention to sickle cell disease. After a meeting, they created the "National Association for Sickle Cell Diseases". The name was changed in 1994 to the Sickle Cell Disease Association of America, Inc. Over the course of several years, the organization has grown into over 40 different branches. The organization has partnered with several different medical facilities, local and state government agencies to pursue national health care objectives. Some of the organization's partnerships include: National Association for the Advancement of Colored People (NAACP), National Institutes of Health (NIH), Health Resources and Services Administration (HRSA), Centers for Disease Control (CDC), United Way of America, and the Robert Johnson Foundation.^[1]

Areas of emphasis

• Research
• Public Health Education
• Professional Health Education
• Patient Services
• Community Services
• Support to Global Organizations and Practitioners

^[1]

Events

The Sickle Cell Disease Association of America, Inc. hosts several events throughout each year. It hosts the Annual National Sickle Cell Walk with the Stars each summer. The inaugural walk was held on September 6, 2014, at Lake Montebello in Baltimore, Maryland. This event typically will have a variety vendors, kid activities, prizes and more.^[2] The Sickle Cell Disease Annual National Convention is held annually during October. The event will feature themed experience, with prizes, awards, auctions and educational sessions.^[1]

Notable supporters

• Tionne 'T-Boz' Watkins - The National Celebrity Spokesperson for the SCDAA.^[3]
• Tiki Barber - The former NFL running back has sickle cell disease and does his part educating others.^[4]
• Prodigy - Hip Hop star promotes sickle cell awareness at different events, including the 2011 National Convention.^[5]
• Ryan Clark - NFL Super Bowl champion with the Pittsburgh Steelers.^[6]
• Devin McCourty and Ryan McCourty - Twins fight Sickle Cell Disease with Tackle Sickle Cell Organization.^[7]
• Kier "Junior" Spates - SCDAA National Celebrity Ambassador^[8]
• Larenz Tate - Actor is passionate about sickle cell awareness.^[9]
• Santonio Holmes - Runs benefit for son with sickle cell disease.^[10]

Branches and affiliates

Alabama

• North Alabama Sickle Cell Foundation - Huntsville
• SCDAA - West Alabama Chapter - Northport
• SCDAA Central Foundation Central Alabama - Birmingham
• SCDAA - Mobile Chapter
• Sickle Cell Foundation of the River Region - Montgomery
• Southeast Alabama Sickle Cell Association, Inc. - Tuskegee

California

• Cayenne Wellness Center - Glendale

Colorado

• Colorado Sickle Cell Association - Denver

Connecticut

• Michelle's House / SCDAA Connecticut - Bridgeport/New Haven

Delaware

• Tova Community Health - Wilmington

Florida

• Levi Long Sickle Cell Association, Inc. - Daytona Beach
• Sickle Cell Association of Orange, Osceola, and Seminole Counties
• SCDAA of Escambia & Santa Rosa Counties - Pensacola
• SCDAA - Dade County Chapter, Inc. - Miami
• SCDAA - St. Petersburg Chapter
• Sickle Cell Association of Hillsborough County - Tampa
• Sickle Cell Disease Association of Broward County - Ft. Lauderdale
• Sickle Cell Disease Association of Florida - Tampa
• Sickle Cell Foundation of Palm Beach County & Treasure Coast Inc. - West Palm Beach
• Sickle Cell Foundation, Inc. - Tallahassee
• Sickle Cell Medical Advocacy, Inc. - Orlando

Georgia

• Sickle Cell Foundation of Georgia, Inc. - Atlanta

Illinois

• Sickle Cell Disease Association of Illinois - Chicago
• Sick Cells - Lisle

Illinois

• Martin Center, Inc. - Indianapolis

Kansas

• Uriel Owens Sickle Cell Disease Association of the Midwest - Kansas City

Louisiana

• Etta Pete Sickle Cell Anemia Foundation - Lake Charles
• Northeast Louisiana Sickle Cell Anemia Foundation - Monroe
• SCDAA - Northwest Louisiana - Shreveport
• Sickle Cell Anemia Resource Foundation - Alexandria
• Sickle Cell Association of South Louisiana - Baton Rouge

Maryland

• Association for the Prevention of Sickle Cell Anemia of Harford/Cecil Counties and Eastern Shore
• Maryland Sickle Cell Disease Association, Inc. (MSCDA)

Massachusetts

• Massachusetts Sickle Cell Association - Dorchester

Michigan

• SCDAA Michigan - Detroit

Minnesota

• Sickle Cell Foundation of Minnesota - Minneapolis

Missouri

• Sickle Cell Association of St. Louis - St. Louis

Nevada

• Bridging the Gap - Adult Sickle Cell Disease Foundation of Nevada - Las Vegas

New Jersey

• The Sickle Cell Association of New Jersey, Inc. - Newark

New Mexico

• The Sickle Cell Council of New Mexico - Albuquerque

New York

• Falling Angels Sickle Cell Foundation - Garnerville
• New York State Sickle Cell Advocacy Network, Inc. - Queens
• Sickle Cell Thalassemia Patients Network (SCTPN) - Brooklyn

North Carolina

• Bridges Pointe Sickle Cell Foundation - Durham
• Piedmont Health Services and Sickle Cell Agency - Greensboro

Ohio

• SCDAA - Ohio Sickle Cell & Health Association - Columbus

Oklahoma

• Supporters of Families With Sickle Cell Disease, Inc. - Tulsa

Oregon

• Sickle Cell Anemia Foundation of Oregon - Portland

Pennsylvania

• Children's Sickle Cell Foundation, Inc. - Pittsburgh
• SCDAA - Philadelphia/Delaware Valley Chapter
• The South Central PA Sickle Cell Council - Harrisburg

South Carolina

• James R. Clark Memorial Sickle Cell Foundation - Columbia

Tennessee

• Sickle Cell Foundation of Tennessee - Memphis

Texas

• Sickle Cell Association of Houston - Houston
• Sickle Cell Association of Texas Marc Thomas Foundation - Austin

Virginia

• Sickle Association, Inc. - Norfolk

Wisconsin

• Sickle Cell Warriors of Wisconsin